* This is an updated version of the original post that was published in July 2013.
For as long as I can remember, I have always been tired. I was a fragile child who was always falling or tripping over something, clumsy and oversensitive. The child who is always crying or laying sick in bed.
Despite all of this, I managed to get married and have two beautiful daughters, get divorced and remarried to my wonderful husband of now 25 years.
We built a good life for yourselves, but the pain and fatigue were always there. Each morning, it was sheer torture to get out of bed and, most of the time, I felt like I hadn’t slept at all.
Finally, my symptoms had a name
When I finally decided to consult, specialists were all unanimous, not enough exercise and some even said that I was too young for Fibromyalgia. But I am a very stubborn person, and I kept on researching on the net and in all kind of books.
Until one day my mother, who also has the disease, gave me the name of a doctor who she just started seeing and who was specialized in this complex illness.
My years of thinking that it was all in my head, that I was weak, of people telling me I listened too much to myself, of people looking at me like I was crazy were over. My symptoms had a name, a diagnostic. It was, after all: FIBROMYALGIA.
What is Fibromyalgia
My doctor explained to me what really are the mechanics of this unusual syndrome. Fibromyalgia is a disease of the central nervous system. It sends wrong signals throughout the body, and these signals trigger musculoskeletal pain for no reason.
This unbalanced process is so exhausting for the body that it “forgets” to take care of other areas, and this is what gives us all the symptoms besides the chronic fatigue and the pain.
Symptoms associated with Fibromyalgia:
- Muscle spasms
- Difficulty thinking (Fibrofog)
- Morning stiffness
- Sleep disorder
- Trouble concentrating
- Irritable bowel syndrome
- Restless leg syndrome
- Balance problems
- Vision problems
- Hand tremors
- And more…
Fibromyalgia often brings sensitivity to:
- Bright light
- Certain foods
This video below is an excellent summary of the syndrome, symptoms, causes as well as treatments:
A new life was waiting for me
As you can see, Fibromyalgia is not a simple condition, and it can be confused with others illnesses. But now, I could put a name to the disease. With my new medication in hand, I was full of hope and was extremely relieved to finally have a diagnosis.
It’s been over 10 years since I was diagnosed and I am so much better. Naturally, I still have to be careful with my health. I will never be a superwoman, I can’t work full time and take care of my family at the same time, I can’t go rock climbing or participate in a marathon.
But I have a wonderful and understanding family as well as amazing friends. I think that I am a pretty smart person, I returned to school to take my nursing course, and I started this blog which was an old dream of mine, but most of all, I am loved.
Since September 2014, I started working at a veterinary clinic. This job allows me to combine 2 of my great passions; animals, and nursing. Honestly, I couldn’t be happier!
Ok! I will never be a superwoman, but I don’t mind
And that’s why I wanted to share my story with others. When I was younger, I often asked myself why this was happening to me. But now, I tell myself exactly the opposite.
Why am I so blessed. Blessed with my family, blessed with my friends, blessed with a pretty stable life, moneywise. I have a beautiful house, plenty of food on the table and plenty of clothes.
No, I will never be a superwoman, but I don’t mind. It is not necessary to be a superwoman when you have all the things I am so fortunate to have.